IMDPWF – Inherited Metabolic Disorder Patients Welfare Foundation

About Us

At IMDPWF, we are dedicated to creating a nurturing haven for families and children facing the unique challenges of inborn metabolic disorders. We understand that each child is a unique individual, and our mission is to provide comprehensive support, resources, and a sense of community for families navigating this journey.

Our Commitment

At IMDPWF, we are committed to..

Empowering Families

Providing families with the knowledge, tools, and resources needed to navigate the complexities of inborn metabolic disorders.

Holistic Support

Offering comprehensive support that addresses not only the medical aspects but also the emotional and social well-being of the child and their family.

Building Community

Fostering connections among families who share similar experiences, creating a supportive network where understanding and empathy thrive.

Inherited Metabolic Disorders in Children's

Inherited metabolic disorders are rare conditions caused by genetic mutations that affect the body’s ability to process certain substances, such as proteins, carbohydrates, or fats. These disorders often present early in life and require a multidisciplinary approach for effective management.

What are Metabolic Disorders in Newborns?

Metabolic disorders are a group of genetic conditions that impact the body’s ability to process specific substances, such as proteins, carbohydrates, or fats. In newborns, these disorders are often present from birth and can lead to various health challenges if not identified and managed early.

Common Types of Metabolic Disorders

1) Glucose - Galactose Intolerance
2) Methylmelonic Acidemia / Propionic Acidemia
3) ISO-Valeric Acidemia
4) Mapple Syrup Urine Disease
5) Glutaric Acidemia
6) CBS / Homocystinuria
7) Phenylketonuria
8) Urea Cycle Disorder
9) Fatty Acid Oxidation Disorder
10) Tyrsenaemia
11) X-Linked Adrenoleukodystrophy

Childrens Saved

Medical Facilities

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Members Worldwide

What We Achieved

IMDPWF facilitates a supportive community for individuals and families affected by metabolic disorders. Through support groups, events, and online platforms, we encourage connections, shared experiences, and mutual support. MDPWF is a voice for change. We actively advocate for policies and regulations that benefit individuals with metabolic disorders.

Highlights

Here are some highlights that illuminate the impact and initiatives of our Metabolic Disorder Welfare Organization (IMDPWF)

They Need Your Help!

At IMDPWF, we believe in fostering a community of strength, resilience, and hope. Join us as we strive to make a positive impact in the lives of children with inborn metabolic disorders and their families. Together, we can create a brighter future.

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